Building a Network: Black Women's Visions for Online Peer Support and Advocacy in Health Care

Abstract

Black women have long traditions of peer support and self-advocacy that has been advanced by the current digital age. Social media and online platforms have become spaces where Black women share and connect with other Black women, and campaign for their own needs regarding health care access and navigation. Drawing on the findings emerging from a focus group discussion between six Black women that explored their experiences in Ontario based health care settings, this paper describes women’s suggestions for increasing access to Black and women-centered virtual health-related support and advocacy. Findings reveal that despite being young, Canadian-born and university educated, anti-Black racism and sexism permeates the health care encounters of all Black women; that Black women engage in emotionally taxing labour to have their health care needs met; and that Black women’s positive and challenging experiences inform their suggestions for support and advocacy online with other Black women. The women’s visions for health care support and advocacy expose an urgency for race and gender-specific online health care support and health care reform that acknowledges the legacies of Black patients and goes beyond structural competency.