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http://hdl.handle.net/11375/27940
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DC Field | Value | Language |
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dc.contributor.advisor | Klassen, Anne | - |
dc.contributor.advisor | Thoma, Achilles | - |
dc.contributor.advisor | Voineskos, Sophocles | - |
dc.contributor.author | Gallo, Lucas | - |
dc.date.accessioned | 2022-10-07T13:39:58Z | - |
dc.date.available | 2022-10-07T13:39:58Z | - |
dc.date.issued | 2022 | - |
dc.identifier.uri | http://hdl.handle.net/11375/27940 | - |
dc.description.abstract | BACKGROUND: The FACE-Q Craniofacial module measures outcomes that matter to patients with diverse craniofacial conditions. However, it is not known whether completing a patient reported outcome measure (PROM) has a negative impact on patients, particularly children. This study aims to investigate the impact of completing the FACE-Q Craniofacial module and identify factors associated with a negative impact. METHODS: Participants were aged 8-29 years, with a facial difference, who completed at least one module of the FACE-Q Craniofacial module as part of the international field-test study between December 2016-2019. Participants were asked three questions: ‘Did you like or dislike answering this questionnaire?’; ‘Did answering these questions change how you feel about how you look?’; and ‘Did answering this questionnaire make you feel unhappy or happy?’ Univariate and multivariable logistic regression analyses were used to evaluate variables associated with a negative response. RESULTS: The sample included 927 participants. Most patients responded neutrally to all impact questions: 42.7% neither disliked nor liked the questionnaire; 76.6% felt the same about how they looked; and 72.7% felt neither unhappy/happy after completion. Negative responses represented a small proportion of patients across all three impact questions (<13.2%). Increased craniofacial severity, more scales completed, and lower scores on all FACE-Q scales were associated with negative responses for all three impact questions (p<0.01). CONCLUSION: This study provides evidence that the FACE-Q Craniofacial module is acceptable for most participants. Clinicians and study investigators should follow up with patients after completing this PROM to address areas of concern in scale scores. | en_US |
dc.language.iso | en | en_US |
dc.title | Impact of Completing Face-Q Craniofacial Module Scales on Children and Young Adults with Facial Differences: An International Study | en_US |
dc.type | Thesis | en_US |
dc.contributor.department | Health Research Methodology | en_US |
dc.description.degreetype | Thesis | en_US |
dc.description.degree | Master of Science (MSc) | en_US |
dc.description.layabstract | The FACE-Q Craniofacial module measures outcomes that matter to children and young adults with diverse facial conditions. To date, it remains unclear whether asking detailed questions about facial appearance and function can negatively impact patients, particularly children. The purpose of this study was to investigate the impact of completing the FACE-Q Craniofacial module and to identify factors associated with a negative impact in children and young adults. Participants aged 8-29, who completed at least one scale of the FACE-Q Craniofacial module as part of the international field-test study between December 2016-2019, were asked three impact questions following scale completion. Most patients responded neutrally to all questions with negative responses representing only a small proportion of patients (<13%). Increased severity of the facial condition, more scales completed, and lower FACE-Q scale scores were associated with a negative impact. Ultimately, this study demonstrates the FACE-Q Craniofacial module is acceptable for most participants. | en_US |
Appears in Collections: | Open Access Dissertations and Theses |
Files in This Item:
File | Description | Size | Format | |
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Gallo_Lucas_2022May_MSc.pdf | 381.81 kB | Adobe PDF | View/Open |
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