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http://hdl.handle.net/11375/27435
Title: | Family-Managed Home Care in Ontario for Families with Technology-Dependent Children |
Other Titles: | Family-Managed Home Care |
Authors: | Fulton, Andrea |
Advisor: | Butt, Michelle Jack, Susan Carter, Nancy |
Department: | Nursing |
Keywords: | family-managed home care;technology-dependent children;home care nursing |
Publication Date: | 2022 |
Abstract: | Background: Advances in technology have led to an increasing number of CMC-technology dependent children being discharged from hospital to their home communities. Families with CMC-technology dependent children require home care nursing services established prior to discharge. The Family-Managed Home Care model is used by some families to acquire these nursing services. Aim: The study purpose was to explore how families with CMC-technology dependent children describe their use of and experiences with using the Family-Managed Home Care model to coordinate nursing care. Methods: Thorne’s interpretive description method was used. Virtual, in-depth, semi-structured interviews were conducted with nine parents of CMC-technology dependent children. Data was analyzed using Braun and Clarke’s reflexive thematic analysis. Results: Parents of CMC-technology dependent children using the Family-Managed Home Care model became their child’s care manager. The process of managing the child’s care occurs in three interrelated and overlapping phases: (1) transitioning home, (2) building the home care team, and (3) partnering to provide care. Control was identified as a central concept that underpinned each step in the overarching process of managing the child’s care. Parents value the control provided by the Family-Managed Home Care model as this alleviated some stress, anxiety, and uncertainty in caring for a CMC-technology dependent child at home. Conclusion: Parents using this model of home care require enhanced support from LHINs and health care providers. Increasing health care provider knowledge of the Family-Managed Home Care model is needed to further support parents. Improved organization of discharges and policy changes are needed. |
URI: | http://hdl.handle.net/11375/27435 |
Appears in Collections: | Open Access Dissertations and Theses |
Files in This Item:
File | Description | Size | Format | |
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fulton_andrea_m_finalsubmission2022feb_MSc.pdf | 978.85 kB | Adobe PDF | View/Open |
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