"It's Not Probabilities, It's Possibilities": Lay Views of Disclosure Regarding Emerging Health Issues

Abstract

Products and technologies provide us with significant lifestyle benefits but they can also evolve into hazards and bring about concern for human health. A history of poor regulatory performances has resulted in a public displeased with and skeptical of the actors responsible for protecting the public against the unintended effects of progress. It is within this historical and social context that the study explores the following objectives: to understand people's responses to emerging health issues, of which there is considerable knowledge uncertainty and little public awareness; to identify the information needs regarding these issues, and to explore the role of government disclosure for personal decision-making around these issues. Seven focus groups were conducted in Hamilton, Ontario with community members from a range of backgrounds: youth, faith, allophone immigrants, environmental, health, recreational, and mixed. Two scenarios about potential hazards, i.e. a persistent pollutant and extreme heatwaves from climate change, were used to generate discussion about people's experiences with risk and knowledge. Results indicate that emerging health issues are framed by lay individuals as a chronic societal phenomenon. Their concerns about health and well-being, resiliency, and issue comprehension point to an overarching preoccupation about social vulnerability, irrespective of the presence of confirmed hazards. The analysis further revealed several roles for disclosure which would allow for more capacity in personal decision-making; more transparent and accountable regulatory processes, and which could lead to more trustworthy relations between citizens and government.